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Happy 365 Days!

A year ago today on July 22nd our sweet Jettyboy was diagnosed with CHAMP1. I can still remember getting the phone call, then calling Troy and telling him I had no idea what this meant for us… literally because the doctor who called actually told us she didn’t know anything about it (HA!) My bodyContinue reading “Happy 365 Days!”

2 Minutes

Two Minutes: Troy “Two minutes” That is the answer that my two-year-old Cal has been giving me for the past year. This answer usually comes when I tell him that it is time for bed, or time to turn off a show. “Two minutes”. We have tried to explain to him that he doesn’t reallyContinue reading “2 Minutes”


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