We are a husband and wife eager to discover God’s joy through our youngest son’s extremely rare diagnosis. Troy recently discharged from the U.S. Navy as a nuclear engineer and is now studying pastoral leadership at a local college. Stephanie is a registered nurse, currently working in hematology/oncology. Cal is our oldest son, he is spunky with a heart of gold. He is passionate, sensitive and loves his little brother! His favorite things right now are dinosaurs, Scooby-Doo, popcorn, and running “super fast!” Jett is our youngest son who was diagnosed in July 2020, at 13 months old, with an ultra-rare genetic mutation called CHAMP1. He is feisty, determined and always looking for the closest person he can snuggle. His favorite things right now are his pacifier, touch and feel books, bath time and going for walks outside. Whether you stumbled across our blog or sought us out, we’re so excited you’re here to follow along on our journey. We hope you not only learn more about CHAMP1, but experience God’s love and hope for your own life. Thanks for stopping by!